Quality of Dying and Death

Palliative care providers across Africa have emphasized the importance of validated and locally relevant patient-reported outcomes in end-of-life care  to inform in policy, practice and resource allocation. GIPPEC initially set out to expand its Quality of Dying and Death research conducted in Canada to Kenya and Uganda.

The Quality of Dying and Death (QODD) Questionnaire evaluates the dying experience subjectively experienced by those involved. The lines of research in Canada have also assessed the quality of hospice and palliative care through the QODD measure. Currently the most widely studied and validated tool in North America, the QODD Questionnaire had not previously been employed in research in Africa. Findings from Kenya and Uganda identified limitations in the cultural relevance and validity of the QODD measure in Africa. 

Making progress: with an occasional struggle

  Jan 26th, 2017   

In the words of Frederick Douglass, the nineteenth century African-American social reformer, abolitionist, orator, writer, and statesman, “If there is no struggle, there is no progress.”

It’s a saying that accurately captures the study team’s experiences of implementing the GIPPEC-MWAPO Health Development Group’s collaborative...

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Reflecting on challenges to data collection

  Jan 18th, 2017   

Reflecting on challenges to data collection by Nancy Gikaara

It has been both exciting, and a little challenging, working on this unique study in Nairobi Hospice, producing a number of learnt lessons that will serve as a launching pad as the study team moves to the subsequent sites.

To begin with,...

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GIPPEC Launches the Kenya Quality of Death and Dying Study

  Dec 1st, 2016   

After months of planning across two continents by the collaborative research teams in Canada and in Africa, mid-October 2016 was a flurry of activity as Richard Powell (local Principal Investigator) and Nancy Gikaara (Research Assistant) traversed Kenya to launch the quality of death and dying (QODD) study in three local...

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GIPPEC is filming

  Jan 31st, 2016      Louise Lee

GIPPEC is working with our partners, Dr. Faith Mwangi Powell and Richard Powell, on a research project, measuring the quality of death and dying in the Kenyan hospices. Here we are filming to create elearning modules for training researchers to administer the questionnaire and collect data for the...

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Project Initiatives

In collaboration with the University of North Carolina (UNC), GIPPEC developed a revised global version of the QODD (QODD-RGV) measure based on findings of research in Kenya and Uganda.<o :p></o>

Data collection is currently underway with the new measure with 230 bereaved caregivers and staff  across four North American sites: Kensington Hospice, Yee Hong Hospice, Margaret Bahen, and the University of North Carolina (UNC), and in Malawi with the UNC Project Malawi Cancer Program. With support from the Irish Hospice Association, data collection will soon begin in Uganda led by the African Palliative Care Association.

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Gary Rodin

Director of GIPPEC at the Princess Margaret Cancer Centre and Professor of Psychiatry at the University of Toronto

 

Camilla Zimmermann

Department Head of Supportive Care at Princess Margaret Cancer Centre
Head of Division of Palliative Care at University Health Network
Professor of Medicine at the University of Toronto

 

Eve Namisango

Program and Research Manager at the African Palliative Care Association
Senior Health Scientist at the College of Health Sciences, Makerere University

 

Lesley Chalklin

Program Manager, GIPPEC

 

Nazira Jaffer

Executive Director at the Yee Hong Hospice and Yee Hong Centre for Geriatric Care

 

Sarah Hales

Clinician Researcher Princess Margaret Cancer Centre

 


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